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Montana's Pediatric T1D Survey

Diagnosis and Treatment in the Montana Pediatric Population

We have launched this study to learn more about the diagnosis and treatment experiences of pediatric T1D patients in the state, which in the spirit of collaboration, will inform our work with specialists across Montana for the creation of Shared Plans of Care for every child, remote monitoring technology as desired, and 24/7 access to primary care via telemedicine from home or school with pediatric endocrinology consultation as well. This survey will close on Sunday, July 31 at 11:59pm.

 

EXPLANATION OF RESEARCH

As a parent or guardian of a T1D child, thank you for your help to improve care coordination and access to specialty services for Montana’s pediatric type 1 diabetes (T1D) population.

Purpose:
To understand both the narrative experiences and data associated with pediatric T1D diagnoses and care for families of children with T1D.  What we learn from your participation will be utilized to improve the coordination and accessibility of diabetes-specific care for children in Montana.

Procedures:
We will ask you a series of questions related to your experience with T1D. You are able to complete this survey via a digital form accessed by the button following this explanation of research, or you can complete the survey via telephone interview or a paper form.

If you choose to participate via phone interview or paper form, please reach out to type1diabetes@montanapediatrics.org and we will arrange the proper steps for you to do so.

If you choose to complete a phone interview, we will transcribe the responses. At the conclusion of this study period, written responses and transcribed responses will be compiled. We will analyze all of the input to look for common themes and similar experiences. The answers to your questions will be utilized to inform future care models and services for children with T1D.

Confidentiality:
Your answers are anonymous. We will not include your name with your answers. We want you to be open, honest, and share your experiences. The only reason we ask for your name and address (separately on this form) is to provide you with compensation for your time of $50 at the end of the survey.

Risks:
We believe that the risks associated with your participation are minimal.  If for any reason, you become distressed or desire to withdraw from participating in the survey, you are able to do so.

Benefits to You:
You will not receive any direct benefits. However, your participation will help researchers better understand the current challenges and barriers associated with pediatric diabetes care in Montana and may be utilized to develop a system to improve access to needed services in Montana.

Questions:
If you have any questions about the research now or during the survey period, please contact Matthew Larsen, Diabetes Program Manager for Montana Pediatrics, at type1diabetes@montanapediatrics.org

Take the Survey

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